We are thrilled to announce our National Partnership with Cystic Fibrosis Canada and the launch of the Crystal Kite Collection in support of CF research!
50% Of ALL SALES of the new collaboration will be donated to the Cystic Fibrosis Canada in support of research, clinical care, and advocacy for those living with CF.
Mario and Luca Lavorato, founders of NOGU were both diagnosed with cystic fibrosis (CF) at birth and owe their quality of life to the support that Cystic Fibrosis Canada has given throughout the years.
“It has always been a dream of ours to give back to the CF community,” said Mario and Luca Lavorato, founders of NOGU. “We are grateful that the strides made by Cystic Fibrosis Canada have afforded us the stability in our health to do what we love, support a cause that is so close to us, and to help create a world without cystic fibrosis.”
“We are thrilled about the partnership with NOGU,” said Jennifer Nebesky, Chief Marketing and Communications Officer at Cystic Fibrosis Canada. “Mario and Luca are living proof of the progress Canadians with cystic fibrosis are making as a result of advances in research and clinical care. We are so grateful for their generosity”
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus also builds up in the digestive tract, making it difficult to digest and absorb nutrients from food. As improved therapies have helped to address the malnutrition issues, ultimately most deaths related to cystic fibrosis are due to lung disease.
There is no cure but we plan to change that.
Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis and is an internationally-recognized leader in funding CF research, innovation, and clinical care. We invest more funding in life-saving CF research and care than any other non-governmental agency in Canada. Since 1960, Cystic Fibrosis Canada has invested more than $253 million in leading research, care and advocacy, resulting in one of the world’s highest survival rates for Canadians living with cystic fibrosis. For more information, visit cysticfibrosis.ca.